Jeff Leibow’s NF Hope Concert Benefit Two Weeks from Today!!
May 29th, 2011
NF Hope Concert: A Concert To Benefit NF, Inc.
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Jeff Leibow, “Nick Massi” in JERSEY BOYS Las Vegas, is producing the “NF Hope Concert” set to take place on June 12 at 1:30 p.m. at the Las Vegas Hilton. Proceeds from the concert will be donated to NF, Inc., an organization that serves families and individuals with neurofibromatosis, which is more commonly known as NF. “NF Hope Concert” will be hosted by Improv Comedy veteran Matt Donnelly and KTNV Channel 13 Anchor Lisa Remillard, include performances by some of Las Vegas’ biggest stars and also have a great silent auction. Tickets start at $39 and are available at LVHilton.com or by calling the Las Vegas Hilton box office (702) 732-5755 or (800) 222-5361.
The star-studded concert will include performances by Gordie Brown, Rich Little, Dezmond Meeks, Human Nature, Santa Fe and cast members from JERSEY BOYS, Phantom-The Las Vegas Spectacular and THE LION KING. Silent auction items include tickets to Celine Dion, Donny and Marie, Terry Fator, Phantom-The Las Vegas Spectacular, THE LION KING, JERSEY BOYS, show memorabilia, restaurant certificates, spa certificates and more.
The concert is inspired by Leibow’s daughter Emma, who was recently diagnosed with NF. NF is a genetic disorder of the nervous system that results in an ineffective tumor suppressor gene, which allows for tumors to grow on any nerve in the body without warning. Leibow and his wife Melody conceived the idea for the concert upon the realization that they had an obligation to their family and the 100,000 people living with NF to educate more people about the disorder.
“Our goal for this concert is to raise awareness. We are so lucky that I am in a place to put together a concert like this – to gather 1500 people in a room and tell them what neurofibromatosis is and hope they go tell 1500 more people,” says Leibow.
NF is one of the most common genetic disorders and affects more than 100,000 Americans, making it more common that cystic fibrosis, hereditary Muscular Dystrophy, Huntington’s Disease and Tay Sachs combined. Despite its commonality, the disorder receives no federal funding and very few people know about it.
“We pray that Emma will live a relatively symptom-free life and not face any of the extremes we first read about online. That is why I am producing this benefit. That is why I am working every day to make sure more people know about this disorder,” says Leibow.
