September 25, 2010

Vegas Jersey Boys’ Jeff Leibow’s Upcoming November NF Benefit

September 25th, 2010

A Message from JERSEY BOYS Las Vegas’ Nick Massi–Jeff Leibow:

We all have causes we are passionate about. Well, I have one that hits very close to home, Neurofibromatosis (aka NF). My 14-month-old daughter, Emma was diagnosed with it back in May of this year.

That is why I am producing a benefit at Planet Hollywood’s Peepshow Theatre in Las Vegas this November. I am currently in the midst of trying to nail down some Vegas headliners who have all expressed interest in being a part of this. Once I have them confirmed, the date will officially be announced. As of now, it is tentatively, Sunday, November 14.

The show will also feature cast members from Phantom, Lion King and, of course, JERSEY BOYS.

A little background on NF: NF is a genetic disorder with no cure. One in every three thousand children are born with it. Its name was derived from the tumors that can grow on any nerve in the body at any time, called neurofibromas. The affect this
disorder can have ranges from slight attention and learning disabilities to severe physical deformation. Amazingly, very few people are aware of this disease, making fundraising very difficult.

My goal with this benefit is to get 1,350 people in that theater to not only teach them about this disease in hopes they will teach someone else, but also to raise money for research and to help those living with this disease.

If you want to follow the progress, check out the benefit’s Twitter page at http://www.twitter.com/vegasnfbenefit. If you want to learn more about the charity, NF, Inc., visit their website: http://www.nfnetwork.org.

Please help spread the word about the benefit and NF.

Thank you in advance for all your help!

Jeff Leibow

Jersey Boys Blog will be keeping everyone posted on Jeff’s upcoming NF benefit as more details become available.

1 Comment »

  1. Thank you, Jeff for taking on the challenge of educating people about this little known, but not-so-rare, disease which my precious daughter also has. There IS a huge range of impact for each person, as you’ve noted, which presents extra difficulties for education (and finding appropriate support).

    You are the only JB professional who I can say, I met before you were in this life changing show (a bit of a stretch perhaps, because you were into auditions when we spoke at the August Wilson). I hope I’ll be able to say that I still know you many years from now, as your commitment to those with NF continues.

    I wish you the very best on your upcoming Benefit and…on the joys and personal growth which always comes with parenting. You can count on my support for the work you’re doing!

    Comment by Audrey — September 26, 2010 @ 1:02 pm

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