March 12, 2015

Let’s Help Jeff Leibow (@JeffLeibow) Get Support for NF Research in the Federal Budget! Please Write Letters to Congress by 3/20/15!

March 12th, 2015
The Leibow Family (Melody, Emma, and Jeff) at the 2014 NF Hope Concert.

The Leibow Family (Melody, Emma, and Jeff) at the 2014 NF Hope Concert.

To All Jersey Boys Blog Readers,
We have an incredible opportunity to help longtime/former JERSEY BOYS Las Vegas cast member Jeff Leibow (and now Executive Director with NF Foundation) with a very important project: to get support for Neurofibromatosis research in the federal budget!

By writing letters to elected officials, we can assist Jeff with in his goal of raising awareness and federal funding for NF research for the 100,000+ persons (including Jeff’s daughter Emma) who are currently living with this disorder.

Please read Jeff’s letter to JB fans below & let’s help him reach his goal! His deadline is next week–Friday, 3/20/15!

Hi everyone!

This doesn’t require a penny; it won’t inundate you with spam; all it will take is literally 60 seconds or less, but it will help change the lives of more than 100,000 people living with NF.

What you’re doing when you follow the link below to send in a letter to your Congressional members and Senators is encouraging them to sign a Dear Colleague letter that will circulate around the House and Senate requesting funding for NF research via the Congressionally Directed Medical Research Programs (CDMRP).

To help express this desire for federal funds for NF research, Congressman Luis Gutierrez (D-IL) and Senator Edward Markey (D-MA) are circulating two Dear Colleague letters seeking support for NF research in Fiscal Year 2016. The first letter requests $15 million for the Army’s NF Research Program (NFRP) in the FY2016 Defense Appropriations bill. The second letter requests inclusion of report language on NF research at the National Institutes of Health in the FY2016 Labor-HHS-Education Appropriations bill.

Emma and the tens of thousands living with NF need YOUR help to get as many Congressional signatures as possible on these letters to show strong support of NF research!

As I said, THIS WILL ONLY TAKE 60 SECONDS OF YOUR TIME to encourage YOUR Congressional members to add their name to these letters by the March 20 deadline.

Here is the link:

PLEASE POST THIS, SHARE THIS, TWEET THIS, EMAIL THIS. The more our Congressional members and Senators hear from their constituents, the better chance all of them will sign the Dear Colleague letters.

From the bottom of our hearts, thank you!
Jeff & Melody Leibow

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